I was diagnosed with EDS, Ehlers Danlos Syndrome. It’s a progressive disease with no cure and one that I have passed on to my children unknowingly. I am lucky I made it to my 30’s before the pain became unmanageable and now, I live with what I thought I couldn’t bear and all of it comorbidities. I know my children will face the same future and hopefully not have a harder path in front of them. Upon learning of my own diagnosis, we made some decisions with doctors and moved out of state for a better medical future and out of the cold climates. My spouse sold his very successful business and we started from scratch in hopes of providing the best future possible to our children. We built an ADA home for them, and we know our future holds those accommodations. It is now that I have learned there is little support for those with disabilities. So, when looking for a new business in our new town, we choose Mobility City of Las Vegas. It’s a company where we sell, rent and repair Durable Medical Equipment such as Wheelchair, Scooters, Hospital Beds, Patient Lifts, etc. It has given us the chance to work as a family. My husband and I run the business and our 16 year old works weekends with us. We are trying to build a company to pass down to them and as they grow each child will have the opportunity to work for the store or be able to utilize the equipment they will need in the future at a lower cost. We took our new family diagnosis and turned it into a new family business.
Congrats for forward thinking. I too have EDS, I am in my 70s. We have made our bathroom accessible and are working on the rest of the house which is about 75% accessible right now. What is the name of your business.
I luv to hear your in your 70’s with this, they have told us to expect a shorter life expectancy with the heart issues, so that is comforting. Our store is called Mobility City of Las Vegas. We have been open since December. It’s amazing to be able to do it as a family and for other families.
are you in Las Vegas NV and do you service other areas. I am assuming that you rent scooters and other equipment and deliver to local businesses. Is this correct? I work with some nursing organizations that hold conferences in your area about every 3 years and I can certainly let them know of your business.
As far as me and EDS. I have the hyper mobile type I have had 2 cardiac caths and no vascular issues but there is always that risk. Genetic testing helps define the risk better. One tip I can share is frequent flying might increase your risk due to cabin pressure changes. My sister had an aneurysm and that was one of the risks they contributed.
While the diagnosis, and knowledge your children will also suffer, this was an uplifting post. We are part-time in Las Vegas, and will keep your business in mind. My husband is 9 years into being a C3-7 quad. You are right: there is really little no help. We refuse to give away our savings to go on Medicare. Good for you for your forward thinking! If we need to rent something in Vegas the future, we will be sure to use your services. Best of luck to you all.
What a great way to take lemons and make lemonade. I wish you much success with your health and with your new business. There is such a need for the equipment you have in your store. I have obe suggestion. I am assuming you are in business to sell the wquipment but consider maybe a separate division or even a separate business for renting this equipment especially seeing as you are in a high tourist area. So often it is much easier to rent what you need at your destination than to have to bring it all with you. I have a power wheelchair but find it easier to rent a scooter wrenever I go on a cruise. Likewise I rented a scooter while in NYC for a few days. The rental company delivered it to the bell stand and then picked it up from there. (Before I had a chair) loved to attend a craft show but I couldn’t walk the convention center so I was able to rent a scooter for a few hours to use to busit the show. That particular company only rented scooters to tourists and delivered to hotels downtown but because I had done business with the man who opened this for his retirement years, he rented to me.
Best wishes for your success
Yes, in Las Vegas and service all of Clark County. You are correct that we rent mobility equipment and deliver to where they need it. We also repair equipment so if something happens while they travel in we can take care of them also. I appreciate the kind referral.
Thank you for the travel information I never knew flying was a higher risk.
Thank you for your kind reply, We would be honored to be able to assist you!
Thank you for your reply, I agree renting is easier. I have yet to purchase my own chair and rent when I travel as those are my longest walks. We rent, sell, and most importantly repair mobility equipment within 24-48 hours so no one is stuck without a unit not working. We are actually a franchise and there maybe a location where you are or travel next. Mobility City is growing every day and reaching out to assist as many people as we can.
That is awesome. I wish you every success. Keep us posted. Darleen
Congratulations, I will keep your store in mind if I ever get a chance to visit Las Vegas.