Hello, All! I am Cheryl and the wife of a newly handicap husband. We’ve been together for 40 years but handicap for just 7 years. We are still learning about accessibility and safety while traveling. We both feel very vulnerable in new/foreign places and at night while he is in his wheelchair and I am alone beside him. I am ambulatory but my husband Scott is a 3 time Cancer Survivor that left him learning how to walk again. Condrosarcoma took his pelvis bone and part of his femur. He uses a wheelchair most of the time but can walk about 200 yards using a leg brace and crutches before has has to sit. We have 2 grown daughters, one Son-In-Law and a whole lot of pets. You probably won’t see Scott posting here. He is not much for Social Media. But I am! I found out about this site by attending The Abilities Expo in Houston and listening to Debra Kerper speak on Travel, specifically, cruising. She made is sound easy!
We’ve always loved cruising and have since learned the ropes around ships and attaining the very limited and affordable accessible rooms etc. Still learning about off shore excursions and that if you want to see something, you’re gonna have to pay more than ambulatory people. Or that Scott is simply not allowed to participate. We do the best we can to see what we want. But is there a better way?? Mostly we enjoy a quiet get away from doctors, therapists, Labs, Orthotists, etc appointments. He is retired and I am semi-retired both of us from the airline industry so we’ve already traveled extensively in our jobs. But learning to travel now has presented us with new challenges.
Scott finds it difficult to sit for long periods of time on planes. Imagine sitting with no hip on one side. The strain to stay upright hurts his back. That limits us to local ports for cruises. We live in the Houston area and mainly cruise out of Galveston TX. That somewhat limits our destinations but we are very happy to just enjoying the amenities of the ships. Road trips are hard on him, too but we try to make it to the beaches of Corpus Christi once a year. The more he sits, the longer he need to be be prone to recover.
I am the mule. I do all the planning. I lift his EZLite wheelchair in and out of places and carry all our baggage. I am stronger than I ever have been! LOL I struggle learning to be alone while on vacation during the hours Scott is napping and resting. I have never traveled solo before and I despise eating in restaurants alone. But I am learning to become independent while away from home. I just hate to miss out on things simply because I am alone! As a Caregiver, I have my own sets of challenges.
I love to learn and look forward to learning from all of you here. ~Cheryl