Anyone here ever been diagnosed with a handicap to later find out you have a totally different handicap which alters your treatment plan, which in turn alters your travel plan (s)?
It did not alter my travel plans mostly because I am stubborn and do what I want to do. I was initially diagnosed with MD but then when the genetic results came back it was Ehler Danlos Syndrome. So I had to change the thought process but not the plans. Somedays I am angry about the misdiagnosis but most days I just try to figure out what my next step is. I travel for work and fun. I use a wheelchair and am able to do most things anyhow. I am working on plans right now to go to the Grand Canyon. I should tell you that I usually travel alone. At least for work